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the histio fund raising awareness for histiocytosis: rare but equal home about us raising awareness for histiocytosis stephanie's story -ebv and hlh haemophagocytic lymphohistiocytosis (hlh) products & donations angels & warriors of histiocytosis (show) stories of hlh/ lch angels & survivors case studies page 1 stories of hlh/ lch angels & survivors case studies page 2 videos bupa london 10km run 27/05/12 contact us news & events for histiocytosis links stephanie's story -ebv and hlh symptoms & treatment of hlh rachel mayer hlh warrior hannah marsh warrior deakon beavers hlh warrior avery by erin schlesinger williams flaherty makayla gonzales nicholas malho-cabral cameron devenney enya wyatt alex johnson christiana 'kit' mcelwee darryll grass ben esme carter glenda walker amy samchisen jeni rose josh hill ross docherty leon gunby lily hawker tuesday ryan o'shea declan bennet liam covey freya rose-king james kelly lana & ben leeson laura misselbrook manolis manos lana linderman joseph cooper if you are reading this for the first time, chances are you have never heard of the word histiocytosis. you are not alone. most oncologists and haematologists only ever learn about it when they are studying in medical school. these doctors will only ever diagnose a few patients each year if any. this gives an indication just how rare histiocytosis is.... poem on histiocytosis - a rare disease histiocytosis what is that? you may ask. it is a rare blood disease,that destroys as it attacks. it can affect any part of the body, from skin, organ, blood, and bone. no one knows where it comes from, the cause is yet unknown it acts just like a cancer, it'll take a life, you see. there is no simple answer, oncologists are who you need. chemotherapy, blood transfusions, transplants, and steroids; these are treatments that are needed and the patients can't avoid. we need to find a cure, to defeat this rare disease. but, without the proper funding, our goals we'll never reach. government won't fund it, not one single penny. they say it's not that common, that it doesn't affect that many. we need doctors to do research, if we're going to find a cure. no one is immune from this, there's always more and more. many have already lost their lives and many more will too. if we are going to change the outcome, it starts with me and you. help us in our fight, against histiocytosis. join our cause, give a donation and pass on the awareness. i thank you for your help, it means so much to me. i know what it's like, first hand. my child has this rare disease. written and published with consent by b. kaufman (mother of a histio patient) this site will focus on haemophagocytic lymphohistiocytosis (hlh), for reasons that will become obvious later on. histiocytic disorders are so rare that they are classed as orphan diseases. only a few people are diagnosed and therefore the government does not recognise it as an area that requires funding. independent charities depend solely on donations which are then put towards future medical research. the aim of this site is to help raise awareness and support the registered charities by promoting awareness as well as a further means of generating donations. we hope our site will also give hope and inspiration to others diagnosed and battling against haemophagocytic lymphohistiocytosis (hlh). follow us on twitter @histio and @histiofund join our facebook group 'histiocytosis research trust 2011' copyright (c)2010 follow us on twitter @histiofund and @histio join our facebook group 'histiocytosis research trust 2011'

URL analysis for thehistiofund.co.uk

http://www.thehistiofund.co.uk/index.php?p=1_14_stephanie-s-story-ebv-and-hlh
http://www.thehistiofund.co.uk/index.php?p=1_34_ross-docherty
http://www.thehistiofund.co.uk/index.php?p=1_5_haemophagocytic-lymphohistiocytosis-hlh
http://www.thehistiofund.co.uk/index.php?p=1_38_ryan-o-shea
http://www.thehistiofund.co.uk/index.php?p=1_40_liam-covey
http://www.thehistiofund.co.uk/index.php?p=1_13_videos
http://www.thehistiofund.co.uk/index.php?p=1_11_stephanie-s-story-ebv-and-hlh
http://www.thehistiofund.co.uk/index.php?p=1_8_symptoms-treatment-of-hlh
http://www.thehistiofund.co.uk/index.php?p=1_39_declan-bennet
http://www.thehistiofund.co.uk/index.php?p=1_48_stories-of-hlh-lch-angels-survivors-case-studies-page-2
http://www.thehistiofund.co.uk/index.php?p=1_25_alex-johnson
http://www.thehistiofund.co.uk/index.php?p=1_20_angels-warriors-of-histiocytosis-show
http://www.thehistiofund.co.uk/index.php?p=1_31_amy-samchisen
http://www.thehistiofund.co.uk/index.php?p=1_26_christiana-kit-mcelwee
http://www.thehistiofund.co.uk/index.php?p=1_37_tuesday

Whois Information

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Domain name:
thehistiofund.co.uk

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 10-Dec-2012

Registrar:
eNom LLC [Tag = ENOM]
URL: http://www.enom.com

Relevant dates:
Registered on: 23-Oct-2010
Expiry date: 23-Oct-2019
Last updated: 23-Oct-2017

Registration status:
Registered until expiry date.

Name servers:
ns1.justhost.com
ns2.justhost.com

WHOIS lookup made at 16:03:05 28-Nov-2018

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER co.uk.whois-servers.net

  ARGS thehistiofund.co.uk

  PORT 43

  TYPE domain

DOMAIN

SPONSOR
eNom LLC [Tag = ENOM]
URL: http://www.enom.com
Relevant dates:

  CREATED 23-Oct-2010

  CHANGED 23-Oct-2017

STATUS
Registered until expiry date.

NSERVER

  NS1.JUSTHOST.COM 162.159.24.49

  NS2.JUSTHOST.COM 162.159.25.241

  NAME thehistiofund.co.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

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